Bennett's Genetics Appointment

On Tuesday we went back to U of Iowa Hospitals to follow up with the genetics department for Bennett. They measured his arm span and length again. The doctor that we met with feels that Bennett is still displaying some shortening in both his arms and legs. They took his blood to see if his growth hormones are at the right levels. They also took his blood to do a more in-depth study of his chromosomes. We won't get the first results back for a couple of weeks and the chromosome test takes 6 weeks. She made it clear today, I think, that we could be facing some sort of syndrome or skeletal dysplasia in Bennett. She also noticed that he only has a single crease in his hands which could be a sign of a disorder as well. We will have an x-ray of his bones done through St. Luke's soon and they will also look at his bone-age at that time. They are considering sending off all of the information to that Dr. they sent to before- they took pictures of him too.


Please pray for Bennett as we try and distinguish what may be affecting his growth. Pray for the doctor's as they work to come to a conclusion. Pray for us as we try and do what is best for our sweety. We are on a new journey again...but God has plans for Bennett. When I think back to almost a year ago, the doctors weren't even sure that Bennett would live after birth. We continue to thank God for our little miracle.